Alpha-1 MZFoundation
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Patient registry

Contribute your data to research

Thank you for choosing to share your data. Every result you add turns scattered patient experiences into real evidence — helping advance the science and push toward a cure for AATD that doesn’t overlook the MZ patient.

Create a secure account to add your lab results and help build the evidence base for Alpha-1 MZ. Everything you share is pseudonymised, kept under strict access controls, and you can withdraw at any time.

At least 12 characters. Use a passphrase you don't use elsewhere.

Your consent

Required. I consent to my data being processed in the Alpha-1 MZ Foundation registry for research purposes, on the terms in the Participant Information Sheet.
Contact me about future studies.
Allow my pseudonymised data to be released to researchers approved by the Data Access Committee.
Allow aggregate findings (no individual data) to be included in published research.

The newsletter is a separate, optional sign-up offered after your account is created.