On our completely renewed website you’ll find all kinds of useful and interesting information about alpha-1 antitrypsin deficiency, especially for Alphas with the genotype MZ.
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I’m a mother with 4 of my sons all being told we’ve mz my youngest was the first diagnosed as he’s sickest at 13 . It’s very hard getting help in Texas and no teams at all to cover care our doctors don’t even know what tests to run I’m having to ask for what I’m reading about .
My sister lives in Texas and she is an ZZ. She has an alpha 1 doctor in Texas. I believe it is in El Paso. She is lung affected and gets the weekly infusion. There is help out there! Reach out to the Alpha 1 Foundation and they can help with finding a specialist.
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