As Alpha1 MZ Foundation, we’re receiving more and more feedback on our website and newsletters. We’d like to share some of this feedback with our readers:
“I would like to thank you very much for the fantastic expertise and help you have given me!
Following the results I received from IGene and you, namely M. Heerlen/Z, I contacted the Alpha 1 department at the LUMC.
After a double check of my genetic predisposition by the LUMC, the same result came up (of course).
And after further investigation, I got the biggest surprise: I am eligible for infusion therapy!!!
Today I received my first ‘shot’!
Once again, many thanks to both of you for making this possible for me and for taking me seriously.”
“I just wanted to say how wonderful it was to find your website. It gave me hope – and reminded me I’m not alone. Thank you again for the amazing work you do. Finding your site truly felt like a lifeline. I’d be deeply grateful for any guidance you can offer.”
“I insist that all my doctors subscribe to the Alpha MZ newsletter”
“This is one of the most exciting reports on the state of current research. It comes from the Alpha1 MZ Foundation Newsletter. It is true that it takes years for a prospective therapeutic to get through clinical trials, but there are quite a few that are well on the way. I advise anyone who is an MZ to join the Alpha1 MZ Foundation Facebook group and sign up for the website and newsletter. Also open to ZZs, etc, because we are all in the family.”