Blog

  • Videos of our webinar

    Our webinar that took place in October 2025 was a great success and fortunately we have recorded it.

    We have split the video in separate parts for each speaker, so they can be easily located and watched on our YouTube-channel.

    Click here for the first video, with an introduction by our founder, Frans Frielink, and a presentation by professor Gerry McElvany, called “Delineating the risk of lung disease in MZ alpha-1 antitrypsin deficiency”.

    Click here for the second video, in which Frans Frielink shares his insights on Alpha-1 MZ liver-related morbidities and mechanics.

    The other three video’s will be posted soon, so check out our YouTube-channel or this website regularly!

  • Alpha1 MZ Foundation on Substack

    Until now, we’ve sent our weekly newsletters via an e-mail service connected to this website. Over the past few months, we’ve welcomed so many new subscribers that this option is no longer feasible. We’ve reached the milestone of 500 subscribers, which means we had to look for other possibilities to distribute our newsletters.

    We all thought Substack would be an excellent choice to keep you updated on the latest developments for the Alpha MZ population.

    From now on, you’ll receive our newsletter directly in your inbox. You can also log in to our Substack website to read the full archives and other posts as they’re published.

    So feel free to subscribe to our publications and tell your friends, family and fellow Alpha’s about us.

  • Welcome to our website!

    On our completely renewed website you’ll find all kinds of useful and interesting information about alpha-1 antitrypsin deficiency, especially for Alphas with the genotype MZ.

    Feel free to browse the pages and research materials. We’ll constantly be adding new content. Lots of things are happening in this field.

    You can also download and read our newsletters on this page.